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This document is a registration form for participants in the MORPHEA Registry and DNA Repository, collecting demographic and contact information for individuals contributing to research on morphea.
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How to fill out morphea registry and dna

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How to fill out MORPHEA Registry and DNA Repository

01
Visit the official MORPHEA Registry and DNA Repository website.
02
Create an account by providing your email address and setting a password.
03
Log in to your account and navigate to the registration form.
04
Fill out personal information, including name, address, and contact details.
05
Provide relevant medical history and any previous treatments for MORPHEA.
06
Upload necessary documentation, such as medical records or biopsy reports if required.
07
Review all submitted information for accuracy.
08
Submit the completed form and await confirmation from the MORPHEA Registry.

Who needs MORPHEA Registry and DNA Repository?

01
Individuals diagnosed with MORPHEA who wish to contribute to research.
02
Clinicians and researchers looking for comprehensive patient data.
03
Organizations focusing on developing better treatments for MORPHEA patients.
04
Patients interested in genetic analysis related to their condition.
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There are a wide variety of systemic therapies other than methotrexate, systemic glucocorticoids, and mycophenolate used for active morphea. Examples of these new and emerging treatments include bosentan, infliximab, tofacitinib, and abatacept (53).
Thus, we propose that morphea be classified into the following five groups: plaque, generalized, bullous, linear, and deep. This classification, based on clinical morphologic findings, will simplify the diagnostic and therapeutic approach.
The cause of morphea is unknown. It may be caused by an unusual reaction of your immune system. In people at increased risk of morphea, it could be triggered by injury to the affected area, medications, chemical toxins, an infection or radiation therapy. The condition isn't contagious.
Thus, we propose that morphea be classified into the following five groups: plaque, generalized, bullous, linear, and deep. This classification, based on clinical morphologic findings, will simplify the diagnostic and therapeutic approach.
Due to this variability, morphea may be misdiagnosed especially by non-dermatologists as pigmentary disorders such as vitiligo2. We report a case of a patient with generalized morphea who was delayed from receiving proper treatments due to misdiagnosis as vitiligo at a local oriental clinic.
Morphea is an autoimmune disorder (such as type I diabetes, lupus, vitiligo, or multiple sclerosis, among others). While morphea does not affect lifespan, it can significantly affect a patient's appearance or have symptoms including itching and pain.

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The MORPHEA Registry and DNA Repository is a centralized database designed to collect and store information related to morphea, a localized scleroderma condition. It aims to facilitate research, improve understanding of the disease, and ultimately enhance patient care.
Healthcare providers, including dermatologists and rheumatologists, who diagnose or treat patients with morphea are required to file information with the MORPHEA Registry and DNA Repository.
To fill out the MORPHEA Registry and DNA Repository, healthcare providers must complete the designated online forms or data entry system, providing required patient demographics, clinical details, and any relevant DNA samples as indicated.
The purpose of the MORPHEA Registry and DNA Repository is to gather comprehensive data on morphea cases which can aid in clinical research, enhance treatment outcomes, and foster collaborations among researchers and clinicians to further explore the disease.
Information that must be reported includes patient demographics, clinical history, treatment details, disease severity, and any collected DNA samples or genetic data relevant to morphea.
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