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This document outlines the policy for the use of biological specimens and health information for anonymous or coded genetic research at OHSU, detailing the regulatory requirements and procedures for
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How to fill out Policy for Accessing Tissue Specimens or Information at OHSU for Anonymous or Coded Genetic Research

01
Obtain the Policy document from the OHSU website or contact the appropriate department.
02
Review the eligibility criteria for accessing tissue specimens or information.
03
Complete the required application form, ensuring all sections are filled out accurately.
04
Collect any necessary supplemental documents such as research proposals or consent forms.
05
Submit the application along with any supplemental documents to the designated review committee.
06
Await feedback or approval from the committee regarding your request.
07
If approved, follow any additional guidelines provided for responsible access and use of the specimens or information.

Who needs Policy for Accessing Tissue Specimens or Information at OHSU for Anonymous or Coded Genetic Research?

01
Researchers conducting anonymous or coded genetic research at OHSU who require access to tissue specimens or related information.
02
Institutions or organizations collaborating with OHSU on genetic research projects that involve tissue specimens.
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People Also Ask about

Maintain the confidentiality of the patient's health information, including genetic information. Release a patient's genetic information to third parties only with the patient's informed consent.
Maintain the confidentiality of the patient's health information, including genetic information. Release a patient's genetic information to third parties only with the patient's informed consent.
The State of Oregon has laws to protect the genetic privacy of individuals. These laws give patients the right to refuse to have their health information or biological samples used for research. A biological sample may include a blood sample, sample, or other materials collected from the body.
The principle of informed consent is foundational to the premise that patients and research participants can make autonomous decisions about whether to undergo genetic testing.
Often, genetic information is sensitive because it has implications for the current and future health of individuals and their family members. The information may also have major social and economic consequences.
In short, YES, it is illegal. DNA testing without proper consent beforehand is a violation of the Genetic Information Nondiscrimination Act—or GINA. This act was designed to protect people from being discriminated against based on the results of a DNA test.

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The policy outlines the guidelines and procedures for obtaining access to tissue specimens or associated information for research purposes that maintain the anonymity or coding of genetic data.
Researchers and investigators planning to use tissue specimens or associated genetic information for anonymous or coded studies are required to file this policy.
Filing the policy typically involves completing a designated form that includes details about the research proposal, rationale for access, and compliance with ethical guidelines.
The purpose is to ensure ethical standards in research involving human specimens, protect the privacy of individuals, and facilitate safe and responsible research practices.
Key information to be reported includes the research objectives, method of specimen handling, intended use of data, and assurance of anonymity or coding procedures.
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