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PraderWilli Alliance
of New York, Inc.
267 Oxford Street Rochester, N.Y. 14607
NEWSLETTER January 2000
Telephone (716) 4421655
In N.Y. State (800) 4421655
Fax (716) 2712782
10th Annual Conference
Scheduled
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Who needs the Prader-Willi Alliance - Prader-Willi survey? Anyone who is affected by or involved in the Prader-Willi syndrome community can benefit from participating in this survey. This may include individuals with Prader-Willi syndrome, their family members, caregivers, healthcare providers, researchers, or anyone interested in supporting or learning more about the condition. The survey aims to gather information and insights from individuals with personal experience and expertise in Prader-Willi syndrome to improve understanding, support, and advocacy for this rare disorder.
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