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SMA Registry Core Data Item Mandatory Items 1. Personal data Sex First name Last name Date of birth Address Zip/post code Telephone Email 2. Genetic Test Result: Mutation name in SMN1 gene following
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What is sma core dataset?
SMA Core Dataset is a standardized set of information required to be reported by entities to regulatory bodies.
Who is required to file sma core dataset?
Entities regulated by the specific regulatory body are required to file the SMA Core Dataset.
How to fill out sma core dataset?
SMA Core Dataset is filled out by providing accurate and complete information as per the guidelines provided by the regulatory body.
What is the purpose of sma core dataset?
The purpose of SMA Core Dataset is to ensure transparency and consistency in reporting by entities to regulatory bodies.
What information must be reported on sma core dataset?
Information such as financial data, operational data, risk management information, and other relevant data must be reported on SMA Core Dataset.
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