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This document is a participant information form for an event hosted by the University of Saint Thomas, including a waiver and release, personal information collection, and donation instructions.
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How to fill out childrens neuroblastoma participant information

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How to fill out Children’s Neuroblastoma Participant Information

01
Gather all necessary personal information about the child, including name, age, and date of birth.
02
Include the primary caregiver's contact information, such as name, phone number, and address.
03
Provide a detailed medical history of the child, including any previous diagnoses and treatments.
04
List any current medications and allergies the child may have.
05
Complete the consent form if required, ensuring that it is signed and dated.
06
Submit the form to the designated contact or institution as specified in the instructions.

Who needs Children’s Neuroblastoma Participant Information?

01
Parents or guardians of children diagnosed with neuroblastoma.
02
Medical professionals involved in the treatment and care of neuroblastoma patients.
03
Researchers or organizations conducting studies related to neuroblastoma.
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In stage 4S, the child is younger than 12 months, and (1) the cancer has spread to the skin, liver, and/or bone marrow; or (2) the cancer is in only one area and all of the cancer that can be seen may or may not be completely removed during surgery; or (3) cancer cells may be found in the lymph nodes near the tumor.
Every year in the United States, about 800 children are diagnosed with neuroblastoma. Neuroblastoma almost always develops before age 5. It can occur in babies before they are born. Neuroblastoma is very rare in children over age 10.
In 1990, the global prevalence of NB-PNT was estimated at 41,456 (30,653 − 55,586) cases, with an age-standardized prevalence rate of 0.68 (0.50–0.91) per 100,000. In 2021, these values had increased to 56,326 (38,459 − 75,480) cases and 0.83 (0.57–1.12) per 100,000, respectively.
Low-risk group: Children in the low-risk group have a 5-year survival rate that is higher than 95%. Intermediate-risk group: Children in the intermediate-risk group have a 5-year survival rate around 95%. High-risk group: Children in the high-risk group have a 5-year survival rate around 60%.
Neuroblastoma is a rare type of childhood cancer, but it is the third most common type of childhood cancer, behind leukemia and brain tumors. However, only 600 to 1,000 cases are diagnosed in the U.S. every year.
Neuroblastoma is a type of cancer that starts in early nerve cells called neuroblasts. Normally, these immature cells grow into working nerve cells. But in neuroblastoma (nur-oh-bla-STOW-muh), they grow uncontrollably and become cancer cells that form a solid tumor.
Every year in the United States, about 800 children are diagnosed with neuroblastoma. Neuroblastoma almost always develops before age 5. It can occur in babies before they are born.
Each year in the U.S. there are an estimated 15,780 children between the ages of birth and 19 years of age who are diagnosed with cancer. Approximately 1 in 285 children in the U.S. will be diagnosed with cancer before their 20th birthday. Globally there are more than 300,000 children diagnosed with cancer each year.

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Children’s Neuroblastoma Participant Information is a document or form that collects detailed data about participants involved in clinical studies or registries related to neuroblastoma in children.
Parents or guardians of children diagnosed with neuroblastoma, as well as healthcare providers involved in the treatment and research, are typically required to file this information.
To fill out the Children’s Neuroblastoma Participant Information, provide relevant personal details, medical history, treatment information, and any necessary consent signatures as instructed on the form.
The purpose is to gather essential data to aid in research, improve treatment protocols, and ensure accurate tracking of neuroblastoma cases in children.
The information that must be reported includes the child's demographic details, diagnosis information, treatment history, and any other relevant medical data required by the study or registry.
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