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Spin Bighead and Hydrocephalus Association of Northern Alberta Winter Newsletter 2014 S B H A N A Mission Statement: to improve the quality of life for people affected by spina bifida and hydrocephalus
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How to fill out spina bifida and hydrocephalus
How to fill out spina bifida and hydrocephalus:
01
Start by gathering all necessary medical information, such as the specific diagnosis, treatment history, and any relevant medical reports.
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Provide a detailed description of symptoms and challenges faced by the individual with spina bifida and hydrocephalus. This may include motor difficulties, bladder and bowel problems, and cognitive or learning impairments.
03
Include information about any assistive devices or therapies used to manage the condition, such as mobility aids, shunts for hydrocephalus, or physical and occupational therapy.
04
Specify any accommodations or support needed in educational or work settings, such as specialized education plans or workplace modifications.
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Highlight any additional medical conditions or complications that may coexist with spina bifida and hydrocephalus, such as Chiari malformation or tethered spinal cord syndrome.
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Provide contact information for healthcare professionals involved in the care of the individual, including names, phone numbers, and addresses.
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Sign and date the form to validate its accuracy and completeness.
Who needs spina bifida and hydrocephalus:
01
Infants: Spina bifida and hydrocephalus are congenital conditions, meaning they are present at birth. Infants may require immediate medical interventions, such as surgery to repair the spinal defect or the placement of a shunt to manage hydrocephalus.
02
Children and Adolescents: Spina bifida and hydrocephalus can have a lifelong impact on a person's development and well-being. Ongoing medical management, therapies, and support services are often necessary to address physical, cognitive, and social challenges.
03
Adults: Individuals with spina bifida and hydrocephalus continue to require medical care and support throughout their adult lives. This may include regular check-ups, monitoring shunt function, and managing any related health issues. Additionally, access to appropriate education, vocation, and community resources is essential to enhance their quality of life.
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Caregivers and Family Members: Spina bifida and hydrocephalus can have a significant impact on the entire family. Family members often provide essential support and are involved in decision-making processes, such as coordinating medical appointments and accessing necessary services and accommodations.
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What is spina bifida and hydrocephalus?
Spina bifida is a birth defect that occurs when the spine and spinal cord do not form properly, while hydrocephalus is a condition in which there is an abnormal accumulation of cerebrospinal fluid in the brain.
Who is required to file spina bifida and hydrocephalus?
Parents or legal guardians of children diagnosed with spina bifida and hydrocephalus are required to file the necessary paperwork.
How to fill out spina bifida and hydrocephalus?
The paperwork for spina bifida and hydrocephalus can typically be filled out with the assistance of medical professionals and should include detailed information about the condition.
What is the purpose of spina bifida and hydrocephalus?
The purpose of filing for spina bifida and hydrocephalus is to ensure that individuals with these conditions receive appropriate medical care and support.
What information must be reported on spina bifida and hydrocephalus?
Information such as medical diagnosis, treatment plans, and any other relevant medical history must be reported on spina bifida and hydrocephalus forms.
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