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UNDERDIAGNOSIS OF CELIAC DISEASE MODULE 1 UNDERDIAGNOSIS OF CELIAC DISEASE MODULE 1 UNDERDIAGNOSIS OF CELIAC DISEASE Written by: Melissa Wilson B.Sc. (Hons) SRD Celiac Disease Resource Center Presented
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How to fill out underdiagnosis of coeliac disease

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How to fill out underdiagnosis of coeliac disease:

01
Understand the symptoms and risk factors associated with coeliac disease. These may include gastrointestinal issues, nutrient deficiencies, malabsorption, family history of the disease, and autoimmune conditions.
02
Consult with a healthcare professional, such as a gastroenterologist or primary care physician, who specializes in diagnosing and treating coeliac disease. They can assess your symptoms, medical history, and perform necessary tests, such as blood tests and endoscopy with biopsy.
03
Follow the recommended diagnostic guidelines, which typically involve testing for specific antibodies (such as tissue transglutaminase antibodies or anti-endomysial antibodies) and confirming the diagnosis with a small intestinal biopsy.
04
Adhere to a gluten-containing diet prior to testing to ensure accurate results. It's important not to start a gluten-free diet prior to testing, as it may affect the accuracy of the diagnostic tests.
05
Keep a detailed food diary to track your daily gluten intake and any symptoms you experience. This information can be helpful during the diagnostic process and when discussing your symptoms with healthcare professionals.
06
Inform your healthcare provider about any concerns or questions you may have regarding the diagnostic process. They can provide you with the necessary information and support throughout your journey.
07
Once diagnosed with coeliac disease, work closely with your healthcare team to develop a management plan that includes a gluten-free diet, regular follow-up visits, and potential medical interventions to address any complications or associated conditions.
08
Educate yourself about gluten-free living, including reading food labels, identifying sources of hidden gluten, and learning how to prepare safe and nutritious gluten-free meals.
09
Reach out to support groups or online communities for individuals living with coeliac disease. They can offer valuable advice, tips, and emotional support, as well as help you navigate challenges and lifestyle adjustments associated with the condition.

Who needs underdiagnosis of coeliac disease?

01
Individuals experiencing persistent gastrointestinal symptoms, such as bloating, abdominal pain, diarrhea, or constipation, that do not improve with conventional treatments.
02
Individuals with unexplained nutrient deficiencies, such as iron, folate, or vitamin B12 deficiencies, which may suggest malabsorption issues commonly seen in coeliac disease.
03
Those with a family history of coeliac disease, as it is known to have a strong genetic component.
04
Individuals with other autoimmune conditions, such as type 1 diabetes, autoimmune thyroid disease, or autoimmune liver disease, as there is a higher prevalence of coeliac disease in this population.
05
People who have been previously misdiagnosed or underdiagnosed with other gastrointestinal disorders, such as irritable bowel syndrome, lactose intolerance, or inflammatory bowel disease, despite persistent symptoms.
06
Individuals with associated conditions or risk factors, such as Down syndrome, Turner syndrome, Williams syndrome, autoimmune liver disease, or dermatitis herpetiformis (a skin manifestation of coeliac disease).
07
Those who suspect they may have coeliac disease based on their own research, symptomatology, or discussions with others who have the condition. It is important to consult with a healthcare professional for a proper diagnosis.
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Underdiagnosis of coeliac disease refers to cases where individuals with the disease are not properly diagnosed or misdiagnosed.
Healthcare providers and medical facilities are required to report cases of underdiagnosis of coeliac disease.
Underdiagnosis of coeliac disease can be filled out through medical reports and documentation of the diagnostic process.
The purpose of underdiagnosis of coeliac disease is to track and address instances where patients are not properly diagnosed with the disease.
Information that must be reported includes patient demographics, symptoms, diagnostic tests performed, and any misdiagnosis or lack of diagnosis.
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