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This newsletter provides updates on Stevens Johnson Syndrome awareness activities, including a benefit concert, new memorial pages, educational presentations, and advocacy efforts regarding drug safety
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How to fill out Stevens Johnson Syndrome Foundation OnLine Newsletter

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Visit the Stevens Johnson Syndrome Foundation website.
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Who needs Stevens Johnson Syndrome Foundation OnLine Newsletter?

01
Patients diagnosed with Stevens Johnson Syndrome or Toxic Epidermal Necrolysis.
02
Caregivers or family members of individuals affected by these conditions.
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Healthcare professionals seeking to stay informed on latest research and resources.
04
Advocates and supporters of Stevens Johnson Syndrome awareness initiatives.
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Individuals interested in learning more about the condition and support options available.
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Medications most likely to cause Stevens-Johnson syndrome include: Antibacterial sulfa drugs. Anti-epileptic drugs, including phenytoin (Dilantin®), carbamazepine (Tegretol®), lamotrigine (Lamictal®), and phenobarbital (Luminal®). Allopurinol (Aloprim®, Zyloprim®), a drug used to treat gout and kidney stones.
Stevens-Johnson syndrome/toxic epidermal necrolysis: treatment with low-dose corticosteroids, vitamin C and thiamine.
Serious complications can include pneumonia, overwhelming bacterial infections (sepsis ), shock, multiple organ failure, and death. About 10 percent of people with Stevens-Johnson syndrome die from the disease, while the condition is fatal in up to 50 percent of those with toxic epidermal necrolysis.
Drugs that can cause Stevens-Johnson syndrome include: Anti-gout medications, such as allopurinol. Medications to treat seizures and mental illness (anticonvulsants and antipsychotics) Antibacterial sulfonamides (including sulfasalazine) Nevirapine (Viramune, Viramune XR)
Medications used in the treatment of Stevens-Johnson syndrome include: Pain medication to reduce discomfort. Medication to reduce inflammation of the eyes and mucous membranes (topical steroids). Antibiotics to control infection, when needed.

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The Stevens Johnson Syndrome Foundation Online Newsletter is a publication that provides updates, resources, and support related to Stevens Johnson Syndrome, aiming to inform and engage the community impacted by this condition.
Individuals affected by Stevens Johnson Syndrome, caregivers, and healthcare professionals are encouraged to contribute to or file information through the Stevens Johnson Syndrome Foundation Online Newsletter to share their experiences and insights.
To fill out the Stevens Johnson Syndrome Foundation Online Newsletter, individuals should provide their personal experiences, stories, and any relevant information related to Stevens Johnson Syndrome and submit it through the designated online platform or form.
The purpose of the Stevens Johnson Syndrome Foundation Online Newsletter is to raise awareness, provide education, and foster community support for those affected by Stevens Johnson Syndrome, helping to connect individuals and share vital information.
The information reported on the Stevens Johnson Syndrome Foundation Online Newsletter typically includes personal stories, updates on research or healthcare developments, resources for support, and educational content regarding Stevens Johnson Syndrome.
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