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NIR Resource — Rare Diseases Freephone: 0800 085 3650 Email: rare diseases nihrbioresource.org.UK Web: bioresource.NIR.ac.UK Participant consent form Please tick red boxes and complete the form
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How to fill out nihr bioresource rare diseases:

01
Access the nihr bioresource rare diseases webpage: Go to the official website of nihr bioresource for rare diseases. You can easily find it by searching for "nihr bioresource rare diseases" on a search engine.
02
Registration process: Click on the registration tab or button to begin the registration process. You might need to create an account if you don't have one already. Follow the instructions provided and provide the necessary information, such as your personal details, contact information, and any relevant medical or research background.
03
Consent and agreement: Read through the consent and agreement forms carefully. Understand the terms and conditions, privacy policies, and any legal aspects associated with participating in the nihr bioresource for rare diseases. If you agree and wish to proceed, sign the consent form electronically if available, or follow the provided instructions for submitting a signed hard copy.
04
Medical information: Fill out the required medical information form. This might include details about your diagnosed rare disease, previous medical treatments, current medications, and any relevant medical tests or procedures you have undergone. Provide accurate and up-to-date information to ensure the research and studies conducted through nihr bioresource are based on reliable data.
05
Research involvement: Specify your willingness to participate in any research studies or clinical trials. You may have the option to choose the level of involvement or indicate any specific preferences you have regarding the research activities.
06
Submitting the form: Once you have completed all the required sections and double-checked your information, submit the form. Follow any additional instructions provided on the website regarding the submission process.

Who needs nihr bioresource rare diseases:

01
Researchers: nihr bioresource rare diseases serves as a valuable resource for researchers who are studying rare diseases. By having access to a large and diverse database of individuals with rare diseases, researchers can conduct studies and investigations to gain insights into the causes, treatments, and potential cures for these conditions.
02
Individuals with rare diseases: Those who have been diagnosed with a rare disease can benefit from participating in nihr bioresource rare diseases. By sharing their medical information and participating in research activities, they contribute to the advancement of scientific knowledge and potentially shape the development of new therapies or interventions for their own condition or similar rare diseases.
03
Medical professionals and institutions: The data and findings generated through nihr bioresource rare diseases can be valuable for medical professionals and institutions. It can help them enhance their understanding of rare diseases, improve diagnosis and treatment approaches, and provide better care for individuals with these conditions.
Overall, nihr bioresource rare diseases is a collaborative platform that brings together individuals with rare diseases, researchers, and medical professionals, fostering a collective effort to address the challenges associated with rare diseases and improve the lives of those affected.
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NIHR BioResource Rare Diseases is a program that aims to collect genetic and clinical data from individuals with rare diseases to aid in research.
Individuals with rare diseases and their families are encouraged to participate in NIHR BioResource Rare Diseases.
You can fill out NIHR BioResource Rare Diseases by contacting the program directly or through a participating healthcare provider.
The purpose of NIHR BioResource Rare Diseases is to gather data to improve understanding, diagnosis, and treatment of rare diseases.
Information such as genetic data, medical history, and symptoms related to rare diseases must be reported on NIHR BioResource Rare Diseases.
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