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USERS GUIDE June 2011TABLE OF CONCENTRATE DISEASES AND CROSSREFERENCES.......................................................................................2 EPIDEMIOLOGICAL DATA....................................................................................................................4 ORPHANED

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What is rare diseases and cross-references?

Rare diseases and cross-references refer to a collection of information regarding uncommon medical conditions and the links between various resources related to these diseases.

Who is required to file rare diseases and cross-references?

Healthcare professionals, researchers, and organizations involved in the study or treatment of rare diseases are required to file rare diseases and cross-references.

How to fill out rare diseases and cross-references?

Rare diseases and cross-references can be filled out by providing detailed information about the rare disease, its symptoms, diagnosis, treatment options, and relevant references or resources.

What is the purpose of rare diseases and cross-references?

The purpose of rare diseases and cross-references is to create a centralized repository of information on rare diseases and their associated resources, making it easier for healthcare professionals and researchers to access and share crucial data.

What information must be reported on rare diseases and cross-references?

Information such as disease background, prevalence, symptoms, diagnosis methods, treatment options, ongoing research, and references to relevant studies or resources must be reported on rare diseases and cross-references.

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