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MEDICAL RECORD CONSENT TO PARTICIPATE IN A CLINICAL RESEARCH STUDY Adult Patient or Parent, for Minor Patient INSTITUTE: National Institute of Neurological Disorders and Stroke STUDY NUMBER: 16N0058

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How to fill out focus group informed consent:

1. Read the consent form thoroughly: Start by carefully reading each section of the consent form to understand the purpose and requirements of participating in the focus group. Pay close attention to any specific instructions or guidelines mentioned.
2. Provide accurate personal information: Fill out your personal information accurately, including your name, contact information, and any other details requested. Ensure that all the information provided is up-to-date and correct.
3. Understand the purpose and nature of the focus group: Familiarize yourself with the objectives and goals of the focus group. This will help you make an informed decision about whether or not you want to participate. If you have any doubts or questions, seek clarification from the research team before signing the consent form.
4. Comprehend the risks and benefits: Carefully review the potential risks and benefits associated with participating in the focus group. Assess whether or not you are comfortable with the potential risks and weigh them against the benefits of your involvement. It is crucial to make an informed decision based on this evaluation.
5. Ask questions: If there is any aspect of the consent form that you don't understand, don't hesitate to ask questions. Seek clarification from the research team or the person in charge of the focus group. Ensure that all your doubts are addressed to your satisfaction before proceeding.
6. Seek legal or professional advice if necessary: If you feel uncertain about any legal or rights-related implications of the consent form, consider seeking advice from a legal professional or an ethicist. They can provide guidance and help you navigate the complexities of the consent process.

Who needs focus group informed consent:

1. Participants: Individuals who are being invited to participate in the focus group are required to give their informed consent. This ensures that they are fully aware of the purpose, risks, and benefits of their involvement and willingly agree to participate.
2. Researchers/Research Team: The research team conducting the focus group must also obtain informed consent from participants. Adhering to ethical standards, they need to ensure that participants are fully informed, aware, and willingly agree to take part in the study.
3. Ethical Review Boards/Institutional Review Boards: These boards, responsible for overseeing the ethical conduct of research, often require researchers to obtain informed consent from participants before the study can be conducted. They ensure participant rights are protected and that research is carried out ethically.

Remember, obtaining informed consent is crucial in ensuring the protection and well-being of participants in a focus group. It fosters transparency, trust, and ethical research practices.

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What is focus group informed consent?

Focus group informed consent is a document that outlines the purpose, procedures, risks, and benefits of participating in a focus group research study. It also ensures that participants are aware of their rights and responsibilities before agreeing to take part in the study.

Who is required to file focus group informed consent?

Researchers conducting focus group studies are required to obtain informed consent from all participants before starting the study. This helps ensure that participants are fully informed about the study and voluntarily agree to participate.

How to fill out focus group informed consent?

To fill out a focus group informed consent form, researchers must include information about the study purpose, procedures, risks, benefits, confidentiality, and participant rights. Participants should be given the opportunity to ask questions and are free to decline participation without penalty.

What is the purpose of focus group informed consent?

The purpose of focus group informed consent is to protect the rights and welfare of research participants. It ensures that participants are fully informed about the study before agreeing to participate and that they understand their rights and responsibilities as research subjects.

What information must be reported on focus group informed consent?

Focus group informed consent must include information about the study purpose, procedures, risks, benefits, confidentiality, participant rights, contact information for the researchers, and any compensation or incentives offered to participants.