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Informed Consent/Decline for SMA Carrier ScreeningSpinal Muscular Atrophy ResourcesAbout Integrated Genetics(Continued from other side)Claire Altman Heine Foundation 1112 Montana Avenue Suite 372 Santa
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Informed consent/decline is for ensuring that individuals are fully aware of the risks and benefits of a certain decision or action before giving their consent or declining.
The individual who is making the decision or the authorized representative may be required to file informed consent/decline forms.
To fill out informed consent/decline forms, individuals need to carefully read the information provided, understand the risks and benefits, and then make an informed decision.
The purpose of informed consent/decline is to make sure that individuals have full knowledge of what they are agreeing to or declining, and to protect their rights.
Information such as the risks, benefits, alternatives, and consequences of the decision must be reported on informed consent/decline forms.
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