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SILVER RUSSELL SYNDROME GLOBAL ALLIANCE NEW MEMBER APPLICATION Membership in the SRS Global Alliance is FREE and there are no required meetings or fees. The Silver Russell Syndrome Global Alliance
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What is silver russell syndrome global?
Silver Russell Syndrome Global is a global registry aimed to collect data on individuals affected by Silver Russell Syndrome.
Who is required to file silver russell syndrome global?
Healthcare providers, researchers, and organizations working with individuals affected by Silver Russell Syndrome are required to report data to the Silver Russell Syndrome Global registry.
How to fill out silver russell syndrome global?
To fill out Silver Russell Syndrome Global, healthcare providers and researchers can access the online portal provided by the registry and enter the required information about the individuals affected by Silver Russell Syndrome.
What is the purpose of silver russell syndrome global?
The purpose of Silver Russell Syndrome Global is to create a comprehensive database of individuals affected by Silver Russell Syndrome to improve research, diagnosis, and treatment of the condition.
What information must be reported on silver russell syndrome global?
Information such as medical history, genetic testing results, growth charts, and developmental milestones of individuals with Silver Russell Syndrome must be reported on the Silver Russell Syndrome Global registry.
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