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GENETIC CLINIC INFORMATION 1. CLINIC NAME: Rare disease clinic2. NAME OF INSTITUTE: Sir Adapt mother & child health institute (J K Lon hospital), SMS medical college, Jaipur (Rajasthan)3. NAME OF
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Gather all relevant medical documents and test results related to the rare disease.
02
Contact the rare disease clinic and inquire about their specific requirements for filling out the forms.
03
Fill out the necessary personal information sections accurately and completely.
04
Provide detailed descriptions of symptoms, medical history, and any treatments previously received.
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Include any additional supporting documents or medical records that may be helpful.
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Double-check all filled-out information for accuracy and completeness.
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Submit the filled-out forms and documents to the rare disease clinic either in person, by mail, or as specified by the clinic.
08
Follow up with the clinic to ensure that all necessary information has been received and processed.

Who needs rare disease clinic?

01
Individuals who have been diagnosed with a rare disease and require specialized medical care.
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Family members or caregivers of individuals with rare diseases who need guidance and support.
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Medical professionals seeking to collaborate or consult with specialists in the field of rare diseases.
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Researchers or pharmaceutical companies conducting studies and clinical trials related to rare diseases.
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A rare disease clinic is a specialized healthcare facility that focuses on diagnosing, treating, and providing support for individuals with rare diseases.
Healthcare providers and facilities that specialize in rare diseases are required to file rare disease clinic reports.
Rare disease clinic reports are typically filled out electronically through a designated reporting system provided by the relevant health authorities.
The purpose of rare disease clinic is to track and monitor the prevalence of rare diseases, improve diagnosis and treatment strategies, and enhance overall patient care.
Information reported on rare disease clinic may include patient demographics, symptoms, diagnosis, treatments, and outcomes.
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