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Intractable & Rare Diseases Research. 2015; 4(4):181189. Original Article181DOI: 10.5582/irdr.2015.01043Prediction of prognosis of ALS: Importance of active enervation findings of the cervical upper
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Gather all relevant medical records and diagnostic reports related to the disease.
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Research and understand the symptoms, causes, and treatment options for the specific rare disease.
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Consult with medical professionals or specialists who have experience in dealing with rare diseases.
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People who have been diagnosed with intractable and rare diseases are the ones who need information and assistance in dealing with such conditions.
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Intractable and rare diseases are medical conditions that are difficult to manage and occur infrequently in the population.
Healthcare providers are typically required to file reports on intractable and rare diseases.
Filling out reports on intractable and rare diseases usually involves providing detailed information about the patient's condition and treatment.
The purpose of reporting intractable and rare diseases is to track and monitor these conditions, as well as to inform research and policy decisions.
Information such as the patient's diagnosis, treatment plan, and outcomes may need to be reported on intractable and rare diseases.
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