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Undiagnosed Diseases Network Manual of Operations December 9, 20151Table of Contents TableofAcronyms..................................................................................................................3 I.
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Step 1: Start by reviewing the undiagnosed diseases network manual thoroughly to understand its purpose and contents.
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Step 2: Gather all the necessary information and relevant medical records of the patient, including a detailed medical history, previous test results, and any known symptoms.
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Step 3: Follow the specified format and guidelines provided in the manual to accurately fill out the patient's information, such as personal details, family medical history, and demographic data.
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Step 4: Provide comprehensive information about the patient's symptoms, including their onset, duration, severity, and any factors that may exacerbate or alleviate them.
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Step 5: Document any previous medical evaluations, tests, and treatments the patient has undergone, including the names of healthcare professionals involved and the dates of the procedures.
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Step 6: Clearly articulate the patient's chief complaint and highlight any specific concerns or questions that need to be addressed by the undiagnosed diseases network.
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Step 7: Use appropriate medical terminology, abbreviations, and codes as specified in the manual to ensure effective communication and understanding among healthcare professionals.
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Step 8: Review and double-check all the filled-out information for any errors or omissions before submitting the manual to the undiagnosed diseases network.
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Who needs undiagnosed diseases network manual?

01
The undiagnosed diseases network manual is primarily needed by healthcare professionals, such as doctors, researchers, and specialized medical teams, who are part of the undiagnosed diseases network.
02
Patients with undiagnosed or rare medical conditions who are seeking evaluation, diagnosis, and potential treatment options can also benefit from the information and guidelines provided in the manual.
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Additionally, medical institutions, universities, and research centers involved in undiagnosed diseases research and collaborative efforts may require the manual to streamline their processes and ensure standardized data collection.
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The Undiagnosed Diseases Network (UDN) manual is a set of guidelines and protocols to assist healthcare providers in diagnosing rare and complex conditions.
Healthcare providers and facilities participating in the UDN are required to follow the guidelines outlined in the manual.
The manual provides instructions on how to document patient symptoms, medical history, and diagnostic test results for submission to the UDN.
The purpose of the manual is to standardize the diagnostic process for rare and undiagnosed conditions, leading to more accurate diagnoses and improved patient outcomes.
Patient demographics, medical history, symptoms, diagnostic test results, and any previous treatments must be reported on the manual.
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