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LOGO National Familial Hypercholesterolemia Registry INFORMATION FOR PATIENTS Introduction You are invited to contribute your health information to a database of patients receiving medical treatment
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The national familial hypercholesterolemia registry is a database that collects information about individuals with familial hypercholesterolemia.
Healthcare providers and institutions are required to file the national familial hypercholesterolemia registry.
The national familial hypercholesterolemia registry can be filled out online through a secure portal provided by the regulatory authorities.
The purpose of the national familial hypercholesterolemia registry is to track and monitor individuals with familial hypercholesterolemia for research and treatment purposes.
Information such as patient demographics, genetic test results, lipid levels, and treatment history must be reported on the national familial hypercholesterolemia registry.
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