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Patient generated health data with consent Mikael Winnetka, Founder, Censored Mikael sensotrend.com mrinnetmakiAmsterdam, 1416 November HL7 FirelyTeam #fhirdevdays18 www.fhirdevdays.comHL7, FAIR and
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Gather necessary information from the patient, such as personal details, medical history, symptoms, and any medications or treatments currently being used.
02
Create a structured form or questionnaire to capture the patient-generated health data.
03
Ensure the form includes relevant categories, such as symptoms, vital signs, medications, physical activities, and emotional well-being.
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Clearly instruct the patient on how to accurately fill out the form, including any specific instructions for each category.
05
Provide options for the patient to add detailed descriptions or explanations for each entry, if needed.
06
Ensure the form includes a section for the patient to sign and date, indicating their consent and understanding of the information provided.
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Collect the filled-out forms from the patients and securely store them in a designated database or electronic health record system.
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Regularly review and analyze the patient-generated health data for insights into their health conditions, treatment effectiveness, or potential risks.
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Use the data to personalize patient care, monitor progress, identify patterns or trends, and make informed decisions regarding treatment plans.
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Maintain the privacy and confidentiality of the patient-generated health data by adhering to privacy laws and regulations.

Who needs patient-generated health data with?

01
Healthcare providers and doctors can benefit from patient-generated health data to gain a comprehensive understanding of their patients' health status, monitor progress, and make more informed medical decisions.
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Researchers and scientists can utilize patient-generated health data to study various health conditions, treatments, and outcomes, contributing to advancements in medical knowledge and healthcare practices.
03
Patients themselves can benefit from reviewing their own health data, gaining insights into their health conditions, and actively participating in their own care.
04
Caregivers and family members of patients can also utilize patient-generated health data to better understand and support the patient's health needs.
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Patient-generated health data is data that is recorded or generated by a patient outside of a clinical setting.
Healthcare providers and organizations are required to file patient-generated health data.
Patient-generated health data can be filled out electronically or manually using the required forms provided by the healthcare provider.
The purpose of patient-generated health data is to provide additional information about a patient's health status and activities outside of the clinical setting.
Patient-generated health data must include details about symptoms, medications, treatments, and other health-related activities.
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