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Sickle Cell Disease Association of America, Inc.47th Annual National Convention Sickle Cell Community Embracing Change Together October 912, 2019 Renaissance Baltimore Harbor place Hotel 202 E Pratt
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What is sickle cell community?
The sickle cell community is a group of individuals, families, and organizations dedicated to raising awareness, providing support, and advocating for those affected by sickle cell disease.
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Anyone who is involved in the sickle cell community, including patients, caregivers, healthcare providers, researchers, and advocates, may be required to file reports or documentation related to their activities.
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To fill out sickle cell community reports, individuals can gather information related to their sickle cell-related activities, outcomes, and impact, and then submit this information to the appropriate organization or agency as required.
What is the purpose of sickle cell community?
The purpose of the sickle cell community is to support individuals and families affected by sickle cell disease, raise awareness about the condition, advocate for improved care and treatment options, and promote research to find a cure.
What information must be reported on sickle cell community?
Information that may be reported on sickle cell community activities can include patient demographics, healthcare utilization, treatment outcomes, research findings, advocacy efforts, and fundraising activities.
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