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V o l u m e6, I s s u e1Page1The Stenosis Advocate V o l u me Inside this issue: Presidents Message23Cystaran Launch4Procysbi Update5Capitol Hill Day67Finance Update8Sigma Tau Meeting9Family Conference1015Research
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How to fill out procysbi bitartrate delayed-release capsules

01
Open the bottle of Procysbi bitartrate delayed-release capsules.
02
Take out the prescribed number of capsules as instructed by your doctor.
03
Swallow the capsules whole, without breaking or crushing them.
04
You can take Procysbi with or without food.
05
If you have trouble swallowing the capsules, you may sprinkle the contents of the capsules onto soft food (e.g., applesauce) and swallow it immediately without chewing.
06
Do not store the mixture for future use; it must be taken right away.
07
Close the bottle tightly after use and store it in a safe place.
08
Follow your doctor's instructions regarding the timing and frequency of taking Procysbi.

Who needs procysbi bitartrate delayed-release capsules?

01
Procysbi bitartrate delayed-release capsules are prescribed to patients with cystinosis, a rare genetic disorder that affects the transport of the amino acid cystine in the body.
02
This medication is used to lower cystine levels in the body and prevent the build-up of cystine crystals in various organs and tissues.
03
Only patients with confirmed diagnosis of cystinosis and under the care of a healthcare professional should use Procysbi.
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Procysbi bitartrate delayed-release capsules are a medication used to treat a certain genetic condition called nephropathic cystinosis in adults and children.
Healthcare providers are required to prescribe and administer procysbi bitartrate delayed-release capsules to patients.
Procysbi bitartrate delayed-release capsules should be taken orally as directed by a healthcare professional.
The purpose of procysbi bitartrate delayed-release capsules is to reduce the accumulation of cystine in cells.
Information such as dosage, frequency of administration, and patient's response to the medication must be reported on procysbi bitartrate delayed-release capsules.
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