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Issue 37 / December 2018THE BRITISH PORPHYRIA ASSOCIATION NEWSLETTER Registered Charity No. 1089609SCENESSE PROGRESS The NICE (National Institute for Health and Care Excellence) process for the approval

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Visit the British Porphyria Association website.

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Anyone who has been diagnosed with porphyria or has a family member with porphyria can benefit from joining the British Porphyria Association.

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What is british porphyria association?

The British Porphyria Association is a charitable organization that provides support, information, and resources for individuals affected by porphyria, a group of rare genetic disorders that affect the production of heme, an essential component of hemoglobin.

Who is required to file british porphyria association?

Individuals diagnosed with porphyria and their healthcare providers may be required to report certain information to the British Porphyria Association as part of participation in research, support, and resource allocation.

How to fill out british porphyria association?

To fill out forms or reports related to the British Porphyria Association, individuals should gather relevant personal and medical information, follow the provided guidelines, and ensure all sections are completed accurately before submission.

What is the purpose of british porphyria association?

The purpose of the British Porphyria Association is to raise awareness about porphyria, provide education and support to affected individuals and families, and promote research into treatments and management of the disorders.

What information must be reported on british porphyria association?

Information that may need to be reported includes personal details, medical history, type of porphyria diagnosed, treatment received, and any relevant family history.

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