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Participant Information Sheet Interview Research title Survey and Interviews to elicit the Burden of Illness in Acute Hepatic Porphyria (HP) Patient and Caregiver Members of the British Porphyria

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Gather all necessary information such as name, age, gender, contact details, and any relevant medical or personal information.

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Include a section for the participant to sign and date the sheet.

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Double-check the completed information sheet for accuracy and completeness.

Who needs participant information sheet?

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Organizations conducting research studies or experiments that require participants.

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Medical institutions collecting information for patient records or clinical trials.

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What is participant information sheet?

A participant information sheet is a document used in research studies that provides details about the study, including its purpose, procedures, risks, benefits, and the rights of the participants involved.

Who is required to file participant information sheet?

Researchers and organizations conducting studies involving human participants are required to file a participant information sheet.

How to fill out participant information sheet?

To fill out a participant information sheet, provide clear and concise information about the study, including the title, objectives, requirements for participation, potential risks and benefits, and contact information for questions.

What is the purpose of participant information sheet?

The purpose of the participant information sheet is to inform potential participants about the study, ensuring they can make an informed decision regarding their participation.

What information must be reported on participant information sheet?

The participant information sheet must include information about the study's purpose, procedures, potential risks and benefits, the confidentiality of data, voluntary participation, and contact details for further inquiries.

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