Get the free More Information - Scleroderma Foundation - scleroderma

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How to fill out more information - scleroderma

Point by point, here's how to fill out more information about scleroderma:

1. Start by gathering all relevant medical records and test results related to your scleroderma diagnosis. This may include previous doctor's visit notes, laboratory test reports, imaging results, and any other pertinent documents.
2. Organize your information in a systematic way. Create separate sections or folders for different aspects of your scleroderma diagnosis, such as medical history, current medications, treatment plans, and any complications or comorbidities.
3. Include detailed information about your symptoms and their severity. Describe any ongoing pain, joint stiffness, skin changes, digestive issues, respiratory problems, or other symptoms related to scleroderma. Make note of any triggers or factors that worsen or alleviate your symptoms.
4. Provide a thorough timeline of your disease progression. Include dates of initial symptoms, when you sought medical help, when you received a formal diagnosis, and any significant changes in your condition since then. Mention any hospitalizations, surgeries, or treatments you have undergone.
5. Write about the impact of scleroderma on your daily life. Explain how the disease has affected your ability to work, engage in hobbies or activities, take care of yourself or your family, and maintain social relationships. Mention any adaptations or accommodations you have had to make due to your condition.
6. Include a list of all the healthcare professionals involved in your scleroderma care. These may include your primary care physician, rheumatologist, dermatologist, pulmonologist, gastroenterologist, and any other specialists you consult. Include their contact information and any specific instructions or considerations they have provided.
7. Mention any previous medications or treatments you have tried for scleroderma, along with their effectiveness and any side effects experienced. This will help provide a comprehensive overview of your treatment history and guide future discussions with healthcare professionals.

Who needs more information - scleroderma?

1. Individuals with newly diagnosed scleroderma who are seeking a second opinion or further specialized care.
2. Individuals with long-standing scleroderma who are experiencing new or worsening symptoms and need to provide an updated medical history to their healthcare team.
3. Individuals participating in scleroderma research studies, clinical trials, or support groups who want to share their experiences and contribute to the advancement of knowledge about the disease.

By providing comprehensive and accurate information about your scleroderma, you can aid healthcare professionals in understanding your condition better, making informed treatment decisions, and improving the overall management of your disease.

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