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June 30, 2009, Version 1.0HITSP Quality Measure Reference Document for Public Comment on the Quality Interoperability Specification HITS/REF12Submitted to:Healthcare Information Technology Standards
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How to fill out patient- and family-centered care

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Start by gathering information about the patient and their family. This includes their medical history, preferences, and any specific needs or concerns they may have.
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Involve the patient and their family in the decision-making process. This can include discussing treatment options, setting goals, and creating a care plan together.
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Communicate effectively with the patient and their family. This involves actively listening, providing clear and accurate information, and addressing any questions or concerns they may have.
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Respect the patient's and their family's values, beliefs, and cultural practices. It's important to consider their preferences and ensure that the care provided is sensitive and appropriate.
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Coordinate care across different healthcare providers and settings. This ensures that all members of the healthcare team are informed and involved in the patient's care.
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Continuously evaluate and improve the care provided. This can involve seeking feedback from the patient and their family, monitoring outcomes, and making necessary adjustments to enhance the patient experience.
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Support the patient and their family throughout the care journey. This includes providing emotional support, facilitating access to resources and support services, and addressing any challenges or barriers they may face.

Who needs patient- and family-centered care?

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Patient- and family-centered care is beneficial for all patients and their families. It is particularly important for individuals with chronic illnesses, complex medical conditions, or those who require long-term care.
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Patients who are facing difficult medical decisions or undergoing major treatments or surgeries also greatly benefit from patient- and family-centered care.
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Additionally, patients and families who have experienced a traumatic event or are in a vulnerable state may greatly benefit from the support and involvement provided by this approach to care.
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Patient- and family-centered care is an approach to health care that focuses on the partnership between patients, families, and health care providers. It emphasizes communication, collaboration, and respect for the preferences and values of patients and their families.
Health care organizations, including hospitals, clinics, and other facilities that provide patient care, are required to implement and demonstrate patient- and family-centered care practices.
To fill out patient- and family-centered care documentation, health care providers should gather input from patients and families regarding their care preferences, ensure clear communication of information related to care, and involve them in decision-making processes.
The purpose of patient- and family-centered care is to improve health outcomes, enhance the patient experience, ensure that care is respectful, and support the needs and preferences of patients and their families.
Information that must be reported includes patient satisfaction feedback, engagement metrics, measures of communication effectiveness, and data on how care delivery aligns with patients' and families' needs.
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