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INDEX CASE AND AFFECTED RELATIVESInformed Consent Form Version 1.7 22/05/2018 Study: Parkinson's Families Project (PFP) Chief Investigator: Professor How Morris. Principal Investigator: Professor
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01
Log in to your dbGaP account using your credentials.
02
Navigate to the 'My Studies' tab.
03
Click on 'Create New Study' button.
04
Fill in the required fields such as study title, funding source, and project ID.
05
Provide a brief description of the study and its objectives.
06
Select the appropriate curation level for the study.
07
Fill out the study design section, including the study type, study design type, and sample size.
08
Add information about the study participants, such as demographics and inclusion/exclusion criteria.
09
Upload any necessary study documents, such as protocols or consent forms.
10
Review the information you entered and make any necessary changes.
11
Submit the study for review and approval by the dbGaP team.
12
Once the study is approved, you can start uploading data and sharing it with authorized users.

Who needs dbgap study - nih?

01
Researchers and institutions that want to share genomic and phenotype data resulting from NIH-funded research projects need to use dbGaP study. This includes studies related to human genetics, genomics, and epidemiology.
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The dbGaP (database of Genotypes and Phenotypes) study at NIH is a database that archives and shares information about the relationship between genotype and phenotype in humans, facilitating research into the genetic basis of health and disease.
Researchers who conduct studies involving human subjects and collect genotype and phenotype data are required to file their studies with dbGaP.
To fill out a dbGaP study, researchers must prepare a study submission that includes a detailed description of the study, data sharing plans, and relevant ethical approvals, and then submit it through the dbGaP submission portal.
The purpose of dbGaP is to facilitate the sharing of genetic and phenotypic data in order to enhance biomedical research, foster transparency, and promote collaboration among researchers.
Researchers must report information such as study design, sample characteristics, data collection methods, and how genotype and phenotype data will be used, along with any relevant compliance information.
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