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Secondary progressive MS managing the transition Chatroom 16 May 2012 www.mstrust.org.uk MS Trust, Spirilla Building, Bridge Road, Letchworth Garden City, SG6 4ET Reg Charity no 1088353 Secondary
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How to fill out secondary progressive MS:

01
Start by gathering all necessary information: Collect all relevant medical records, test results, and documentation related to your MS diagnosis and treatment history.
02
Review the application form: Carefully read through the application form provided by your healthcare provider or insurance company. Make sure you understand all the questions and requirements.
03
Consult your healthcare team: If you are unsure about any aspect of the application, reach out to your healthcare team or primary care physician. They can provide guidance and answer any questions you may have.
04
Provide accurate personal information: Fill in your personal details accurately, including your full name, address, contact information, and any other requested information.
05
Include medical history: Provide a comprehensive overview of your medical history, including the date of your MS diagnosis and any subsequent progression. Mention any previous treatments or medications you have received for managing your MS.
06
Describe current symptoms: Describe the specific symptoms and challenges you are currently experiencing due to secondary progressive MS. This could include mobility issues, cognitive difficulties, fatigue, or any other symptoms that significantly impact your daily life.
07
Explain the impact on daily activities: Detail how secondary progressive MS has affected your ability to carry out regular daily activities, such as work, household chores, personal care, or hobbies.
08
Include supporting documents: Attach any supporting documents relevant to your application, such as medical records, MRI scans, doctor's notes, or disability assessment reports. These documents help provide evidence of the severity and progression of your MS.
09
Seek professional assistance, if necessary: If you find the application process overwhelming or challenging, consider reaching out to advocacy organizations or legal professionals who specialize in assisting individuals with disabilities or chronic illnesses.

Who needs secondary progressive MS?

01
Individuals diagnosed with relapsing-remitting multiple sclerosis (RRMS): Around 65-75% of people with RRMS eventually transition to secondary progressive MS (SPMS) after 10-20 years of initial diagnosis.
02
Those experiencing a change in the course of their MS: Secondary progressive MS occurs when the initial relapsing-remitting phase transitions into a more progressive and continuous worsening pattern, often resulting in increased disability.
03
People with significant disability progression: Secondary progressive MS is typically characterized by a steady decline in neurological function, leading to increased disability over time. Individuals with worsening symptoms, increased relapse frequency, and reduced response to treatment may progress to SPMS.
04
Consult your healthcare professional: It is important to consult with your healthcare professional or neurologist for an accurate diagnosis and to determine if you are transitioning from RRMS to SPMS. They can provide the necessary guidance and treatment options to manage your condition effectively.
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Secondary progressive MS is a stage of multiple sclerosis where the disease progresses more steadily and symptoms worsen over time.
Patients diagnosed with secondary progressive MS are required to monitor and manage their disease progression.
Patients can fill out secondary progressive MS forms provided by their healthcare provider or MS specialist.
The purpose of monitoring secondary progressive MS is to track disease progression, symptoms, and treatment effectiveness.
Information such as changes in symptoms, disease progression, medications, and overall health status must be reported on secondary progressive MS forms.
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