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INFORMED CONSENT
Dear parent,
as you know, your son/daughter has autosomal dominant polycystic kidney disease (AD PKD).
Over the past decades, many progresses have been made in understanding the mechanisms
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How to fill out informed consent - form

How to fill out an informed consent form:
01
Read the form carefully: Take your time to understand the purpose and implications of the form. Pay attention to any sections that require your signature or specific information.
02
Provide accurate information: Ensure that all personal details, such as your name, address, and contact information, are accurately filled in. Any errors or omissions may affect the validity of the consent.
03
Understand the risks: Make sure you fully comprehend the risks and potential benefits associated with the activity or procedure you are consenting to. If there are any aspects that you are unsure about, seek clarification from the relevant authority.
04
Seek clarification: If there are any confusing terms or concepts mentioned in the form, don't hesitate to ask for clarification from a healthcare provider, researcher, or any other professional involved in the process.
05
Consent voluntarily: Make sure you are giving your consent freely, without any coercion or pressure from anyone. Informed consent should always be a voluntary and autonomous decision.
06
Ask questions: If you have any doubts or concerns, ask questions to the person administering the form. They should be able to provide you with the necessary information and explanations.
Who needs an informed consent form:
01
Patients in medical procedures: Whenever a medical procedure, surgery, or treatment is involved, it is essential for the patient to provide informed consent. This ensures that the patient is aware of the risks, benefits, and alternatives to the proposed medical intervention.
02
Participants in research studies: Individuals willing to participate in research studies are required to provide informed consent. This helps protect their rights and ensures that they understand the purpose, procedures, potential risks, and benefits of the study.
03
Participants in clinical trials: Similar to research studies, participants in clinical trials must provide informed consent. This allows them to make an informed decision about their participation and ensures they understand the potential risks and benefits associated with the trial.
04
Individuals receiving counseling or therapy: Informed consent is necessary when individuals seek counseling or therapy services. This ensures that they understand the confidentiality, limits of the therapist's abilities, and any potential risks involved.
05
Participants in educational activities: In situations where educational activities involve potential risks, such as field trips or laboratory experiments, participants or their legal guardians are required to provide informed consent.
Overall, the need for informed consent form arises whenever there is a potential risk or impact on an individual's well-being, privacy, or rights. It is crucial for individuals to have a clear understanding of what they are consenting to and to make informed decisions based on that understanding.
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What is informed consent - form?
Informed consent form is a document that ensures participants in a research study or medical treatment understand the risks and benefits before agreeing to participate.
Who is required to file informed consent - form?
Researchers, healthcare providers, or anyone conducting a study or providing treatment that involves human subjects are required to file an informed consent form.
How to fill out informed consent - form?
To fill out an informed consent form, one must provide information about the study or treatment, risks and benefits, confidentiality, contact information, and ensure participants understand the document before signing.
What is the purpose of informed consent - form?
The purpose of an informed consent form is to protect the rights and well-being of participants by ensuring they have enough information to make an informed decision about participating in a study or treatment.
What information must be reported on informed consent - form?
Information such as study objectives, procedures, risks, benefits, confidentiality, contact information, and participant rights must be reported on an informed consent form.
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