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PhDandPostdoctoralStudentHandbook DepartmentofMedicalInformaticsandClinicalEpidemiology 20172018 OregonHealth&ScienceUniversity 1 10/2/2017 X:SOMInformaticsDMICEEducationProgressReportsFellows20172018PhDandPostdoctoralStudentHandbook2017
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Visit the MedlinePlus Genetics website by typing medlineplus.gov/genetics in your web browser
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Search for 'X-linked adrenoleukodystrophy' on the search bar
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Click on the search result for X-linked adrenoleukodystrophy to access the condition's page
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Read the information provided on the page to learn more about the condition

Who needs medlineplusgovgeneticsconditionx-linked adrenoleukodystrophy medlineplus genetics?

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Individuals who are interested in learning about X-linked adrenoleukodystrophy and its genetic aspects
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Healthcare professionals who want to expand their knowledge on this genetic condition
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Patients and families affected by X-linked adrenoleukodystrophy seeking reliable information
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MedlinePlus Genetics provides information about X-linked adrenoleukodystrophy, which is a genetic disorder that affects the nervous system and adrenal glands. It involves mutations in the ABCD1 gene and can lead to severe neurological problems.
Individuals diagnosed with X-linked adrenoleukodystrophy or healthcare providers managing their care are typically required to file updates and provide information relevant to the condition through MedlinePlus Genetics.
To fill out information for MedlinePlus Genetics regarding X-linked adrenoleukodystrophy, individuals should provide accurate medical history, genetic testing results, and any relevant symptoms experienced.
The purpose is to educate patients, families, and healthcare providers about X-linked adrenoleukodystrophy, offering resources, management options, and support information.
Information that must be reported includes genetic test results, family history of the condition, clinical symptoms, and treatment received.
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