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Public Review Due 01/31/2021 Email: CureSCinfo@emmes.comPublic Review Cure Sickle Cell Initiative Common Data Elements (CDE) Monitoring Side Effects Working Group Table of Contents WORKING GROUP SUMMARY.
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Who needs cure sickle cell initiative?

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Individuals suffering from sickle cell anemia who are looking for potential treatments or cures
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Medical professionals and researchers dedicated to finding a cure for sickle cell disease
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The cure sickle cell initiative is a program aimed at funding research and treatment options for individuals with sickle cell disease.
Healthcare organizations, research institutions, and individuals involved in sickle cell research may be required to file the cure sickle cell initiative.
The cure sickle cell initiative may require filling out an application or submitting a proposal detailing the research or treatment plan.
The purpose of the cure sickle cell initiative is to improve the quality of life for individuals with sickle cell disease through research and treatment advancements.
Information such as research goals, proposed treatment methods, budget allocation, and potential outcomes may need to be reported on the cure sickle cell initiative.
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