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This document outlines the protocol for the Patient Reported Outcomes Measurement Information System (PROMIS) Network Study, detailing the procedures, tasks, and methodologies for conducting qualitative
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How to fill out PROMIS Network Study Protocol

01
Gather all necessary background information relevant to the study.
02
Define the study objectives and hypotheses clearly.
03
Identify the target population and sample size needed for the study.
04
Outline the study design specifying the methods and procedures to be used.
05
Collect and document any ethical considerations necessary for the study.
06
Prepare data collection instruments and ensure they are validated.
07
Detail the analysis plan, including statistical methods to be used.
08
Provide a timeline of the study phases and key milestones.
09
Include funding sources and budget breakdown if applicable.
10
Review the protocol for clarity and completeness before submission.

Who needs PROMIS Network Study Protocol?

01
Researchers conducting studies requiring patient-reported outcomes.
02
Institutional Review Boards (IRBs) reviewing the ethical aspects of studies.
03
Funding agencies requiring detailed research proposals.
04
Clinical trial coordinators needing a structured framework for studies.
05
Healthcare professionals involved in designing or evaluating studies.
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Our findings suggest that the total TTC for 3 PROMIS CAT scores was approximately 3 minutes. Each component score—PI, PF, UE, and Depression—was completed in a similar amount of time. Patient age, race, and ethnicity appeared to have an effect on TTC, while sex had no effect.
PROMIS measures are copyrighted. All English and some Spanish PROMIS measures are publicly available for use in one's individual research, clinical practice, educational assessment, or other application without licensing or royalty fees. Commercial users must seek permission to use, reproduce, or distribute measures.
PROMIS assessments are scored on what is called a T-score metric. High scores mean more of the concept being measured. 10 points on the T-score metric is one standard deviation (SD). PROMIS scores have a mean of 50 and standard deviation (SD) of 10 in a referent population.
PROMIS® stands for Patient Reported Outcomes Measurement Information System, which is a system of highly reliable, precise measures of patient–reported health status for physical, mental, and social well–being. PROMIS® tools measure what patients are able to do and how they feel by asking a number of questions.
The PROMIS (Patient-Reported Outcomes Measurement Information System) initiative developed new ways to measure patient-reported outcomes (PROs), such as pain, fatigue, physical functioning, emotional distress, and social role participation that have a major impact on quality-of-life across a variety of chronic diseases
All English and some Spanish PROMIS measures are publicly available for use in one's individual research, clinical practice, educational assessment, or other application without licensing or royalty fees. Commercial users must seek permission to use, reproduce, or distribute measures.
The PROMIS (Patient-Reported Outcomes Measurement Information System) initiative developed new ways to measure patient-reported outcomes (PROs), such as pain, fatigue, physical functioning, emotional distress, and social role participation that have a major impact on quality-of-life across a variety of chronic diseases
For example, the mean Global Mental score for “Excellent” was 61 and the mean score for “Very Good” was 51. The midpoint between these scores is 56.
PROMIS® stands for Patient Reported Outcomes Measurement Information System, which is a system of highly reliable, precise measures of patient–reported health status for physical, mental, and social well–being. PROMIS® tools measure what patients are able to do and how they feel by asking a number of questions.

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The PROMIS Network Study Protocol is a structured framework designed to standardize and facilitate the collection and reporting of patient-reported outcomes and other clinical measures in research studies.
Researchers and institutions conducting studies that utilize PROMIS measures or generate data related to patient-reported outcomes are required to file the PROMIS Network Study Protocol.
To fill out the PROMIS Network Study Protocol, researchers need to follow the guidelines provided in the protocol documentation, which includes detailing study objectives, design, data collection methods, and other relevant information.
The purpose of the PROMIS Network Study Protocol is to ensure consistency and reliability in the assessment of patient-reported outcomes across different studies, ultimately advancing research in health outcomes.
The information that must be reported includes study aims, design, participant demographics, methods of data collection, instruments used, and analysis plans, among other relevant details.
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