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Protocol Number NICHD200309DR16.1.3 Institutional Review Boards (IRS) and Patient Consents and Information 16.1.3.1Names and Addresses of Irish list of IRS that approved the protocol, informed consent
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Read the informed consent form carefully to understand the purpose, risks, benefits, and procedures of the registry.
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Informed consent for registries is a process where participants are given all the necessary information about a registry, including its purpose, risks, benefits, and what their participation entails. Participants must then voluntarily agree to participate by signing a consent form.
Researchers or organizations conducting the registry study are required to obtain and file informed consent from all participants.
Informed consent for registries is typically filled out by the researcher or study coordinator, who provides all necessary information to the participants and addresses any questions or concerns they may have before obtaining their signature.
The purpose of informed consent for registries is to ensure that participants are fully aware of what participation in the registry entails, including any potential risks or benefits, and voluntarily agree to be part of the study.
Informed consent for registries must include details about the purpose of the registry, potential risks and benefits, procedures involved, confidentiality measures, and contact information for questions or concerns.
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