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Offering hope and changing lives through research ING EMM Genetic Test Application Document 2: Informed Consent European delegation of Draft Syndrome Foundation Copy for the ING EMM INFORMED CONSENT
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How to fill out informed consent - dravet
How to fill out informed consent - dravet:
01
Provide the patient's name, date of birth, and contact information at the top of the form.
02
Clearly state the purpose of the informed consent, in this case, it would be for the management of Dravet Syndrome.
03
Explain the benefits and risks of the proposed treatment options for Dravet Syndrome, ensuring the patient or their legal guardian understands the potential outcomes.
04
Clearly outline any alternative treatment options available for Dravet Syndrome and discuss their benefits and risks as well.
05
Describe any potential side effects, complications, or limitations of the proposed treatment that the patient or their legal guardian should be aware of.
06
Provide space for the patient or their legal guardian to ask questions or seek clarifications regarding the informed consent form.
07
Make sure the patient or their legal guardian has had ample time to review and understand the information provided before signing the form.
08
Clearly document the date and time of the informed consent discussion, as well as the signatures of the patient or their legal guardian and the healthcare provider.
Who needs informed consent - dravet:
01
Patients diagnosed with Dravet Syndrome who are considering or undergoing any form of treatment.
02
Legal guardians of minors diagnosed with Dravet Syndrome who are considering or undergoing any form of treatment.
03
Healthcare providers involved in the management and treatment of patients with Dravet Syndrome, as they need to ensure they have obtained informed consent before initiating any interventions.
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What is informed consent - dravet?
Informed consent in Dravet syndrome refers to the process by which individuals or their legally authorized representatives are given information about a particular treatment or study in order to make an informed decision about participating.
Who is required to file informed consent - dravet?
Patients or their legally authorized representatives are required to file informed consent in Dravet syndrome.
How to fill out informed consent - dravet?
To fill out informed consent in Dravet syndrome, individuals need to carefully read the provided information, ask any questions they may have, and then sign the consent form if they agree to participate.
What is the purpose of informed consent - dravet?
The purpose of informed consent in Dravet syndrome is to ensure that individuals understand the risks and benefits of a treatment or study before deciding whether to participate.
What information must be reported on informed consent - dravet?
Informed consent in Dravet syndrome must include information about the treatment or study being conducted, potential risks and benefits, alternatives to participation, and the individual's rights.
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