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Introduction You are being asked to participate in GenomeConnect because you or a family member have had genetic testing and/or have been diagnosed with a genetic condition. The purpose of this registry
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How to fill out genomeconnect consent and assent

01
Review the consent and assent form to understand the information being requested.
02
Provide accurate personal information as requested on the form.
03
Sign and date the form to indicate your consent or assent to participate in GenomeConnect.
04
If you have any questions or concerns, seek clarification from the appropriate individual before signing.

Who needs genomeconnect consent and assent?

01
Individuals who wish to participate in GenomeConnect research studies.
02
Parents or guardians of minors who are participating in GenomeConnect research.
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GenomeConnect consent and assent are forms that individuals must complete to give permission for their genetic and clinical information to be shared and used for research purposes.
Individuals who wish to participate in genetic research studies and share their genetic and clinical information are required to file GenomeConnect consent and assent forms.
GenomeConnect consent and assent forms can be filled out online or in hard copy. Individuals must provide their personal information, agree to participate in research, and give permission for their data to be shared.
The purpose of GenomeConnect consent and assent is to protect the privacy and rights of individuals participating in genetic research studies, while allowing their data to be used for scientific discovery and advancement.
GenomeConnect consent and assent forms typically require individuals to provide their personal information, consent to participate in research, agree to data sharing, and acknowledge the risks and benefits of genetic research.
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