Get the free Privacy Preserving Record Linkage (PPRL) for Pediatric COVID-19 Studies. Privacy Pre...

The Eunice Kennedy Shiver National Institute of Child Health and Human Development (NICHE) Office of Data Science and Sharing (ODDS)PRIVACY PRESERVING RECORD LINKAGE (PERL) FOR PEDIATRIC COVID-19

How to fill out privacy preserving record linkage

How to fill out privacy preserving record linkage

1. Gather the datasets that need to be linked while preserving privacy.
2. Remove direct identifiers from the datasets to ensure privacy.
3. Generate cryptographic hashes for the remaining identifiers in each dataset.
4. Apply a privacy-preserving matching algorithm to compare the hashed identifiers and identify potential matches.
5. Evaluate the quality of the matches and decide on the threshold for linking the records.
6. Merge the matched records while maintaining the privacy of the individuals.
7. Conduct a privacy impact assessment to ensure compliance with privacy regulations.

Who needs privacy preserving record linkage?

1. Researchers working with sensitive data that needs to be linked across different sources while protecting individual privacy.
2. Healthcare providers looking to link patient records for research purposes without compromising patient confidentiality.
3. Government agencies aiming to combine datasets for policy analysis while safeguarding citizen privacy.
4. Financial institutions wanting to detect fraud by linking transactions across accounts while maintaining customer privacy.

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What is privacy preserving record linkage?

Privacy preserving record linkage is a method used to connect data from different sources while maintaining the confidentiality of the individuals represented in the data. It ensures that personal information is not disclosed during the process of linking records.

Who is required to file privacy preserving record linkage?

Organizations or entities that handle sensitive personal data and need to link records from different datasets are typically required to file for privacy preserving record linkage.

How to fill out privacy preserving record linkage?

To fill out privacy preserving record linkage, you would typically need to provide details regarding the datasets being linked, the methods used to ensure privacy, and the purpose of the linkage, while adhering to any specific guidelines set by regulatory bodies.

What is the purpose of privacy preserving record linkage?

The purpose of privacy preserving record linkage is to enable data integration and analysis across multiple datasets while protecting individual privacy and ensuring compliance with data protection regulations.

What information must be reported on privacy preserving record linkage?

Information that must be reported typically includes the datasets involved, the rationale for linkage, methods used to protect privacy, and any potential risks associated with the linkage process.