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2022 Disorders of the Corpus Callosum Conference VOLUNTEER REGISTRATION Formic completing electronically, simply tab from field to field. Save form to desktop and email to info@nodcc.org. Thank you!
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The National Organization for Rare Disorders (NORD) is a nonprofit organization that represents the interests of individuals with rare diseases in the United States. Its mission is to advocate for policies that benefit patients, provide information and resources for patients and their families, and support research for rare diseases.
Organizations that meet the criteria set by the IRS for tax-exempt status under Section 501(c)(3) may be required to register and file with the National Organization for Rare Disorders if they are involved in rare disease advocacy or research.
To fill out a registration or application for the National Organization for Rare Disorders, organizations should complete the necessary forms provided by NORD, which may include details about their mission, programs, and financial information. It is important to provide accurate and complete information to ensure compliance and approval.
The purpose of the National Organization for Rare Disorders is to provide a unified voice for individuals with rare diseases, promote awareness, support research, and improve access to treatment and healthcare for those affected.
Organizations must report information including their mission statement, the populations they serve, financial statements, and details about their programs and activities aimed at supporting individuals with rare disorders.
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