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Rockefeller University Institutional Review Board IRB NUMBER: AAU0112 IRB APPROVAL DATE: 01/10/2022 IRB EXPIRATION DATE: 01/05/2023FANCONI ANEMIA TISSUE AND CELL REPOSITORY USAGE AGREEMENT The recipient
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01
Gather all necessary materials for collecting the tissue sample.
02
Ensure that the patient's identity is verified and confirmed.
03
Select a suitable site for tissue collection, following sterile techniques.
04
Use appropriate tools to safely collect the tissue sample.
05
Label the sample correctly and send it to the laboratory for analysis.

Who needs fanconi anemia tissue and?

01
Individuals who are suspected to have Fanconi anemia based on symptoms and medical history.
02
Patients who are being screened for genetic disorders or conditions that may be linked to Fanconi anemia.
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Fanconi anemia tissue refers to biological samples, typically blood or bone marrow, collected for the purpose of diagnosing or conducting research related to Fanconi anemia, a genetic disorder that affects the body's ability to repair damaged DNA.
Healthcare providers, hospitals, or research institutions handling patients with diagnosed Fanconi anemia may be required to file fanconi anemia tissue reports to relevant health authorities.
To fill out the fanconi anemia tissue report, accurately provide patient demographic details, clinical data, sample integrity information, and relevant laboratory findings to ensure compliance with health regulations.
The purpose of fanconi anemia tissue reports is to monitor, diagnose, and conduct research on Fanconi anemia, facilitating better understanding and treatment of the disorder.
Information that must be reported includes patient identification, type of tissue sample, diagnosis details, test results, and any relevant genetic information related to Fanconi anemia.
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