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Genetics in Medicine Open (2023) 1, 100817www.journals.elsevier.com/geneticsinmedicineopenARTICLE GenIDA, a participatory patient registry for genetic forms of intellectual disability provides detailed
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Genida a participatory patient refers to a structured framework or system designed to engage patients actively in their healthcare decisions, ensuring their voice is heard in treatment plans and medical research.
Healthcare providers, researchers, and institutions involved in patient care and medical research are typically required to file genida a participatory patient to document patient involvement.
Filing out genida a participatory patient involves completing specific forms that detail the patient’s role in their care, consent for participation, and any outcomes or feedback from the patient regarding their experiences.
The purpose of genida a participatory patient is to enhance patient engagement in healthcare, improve treatment outcomes, and gather valuable insights for research and policy-making.
Reported information typically includes patient demographics, consent documentation, participation details, outcomes, and feedback on the healthcare experience.
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