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Last updated: 22 March 2024 Compiled by the NAACCR Data Security & Confidentiality WorkgroupNAACCR Data Release Guidelines Editors: Lauren Maniscalco, Louisiana Tumor Registry Bozena M. Morawski,
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The NAACCR Data Release Guidelines provide a framework for the standardized reporting and dissemination of cancer data, ensuring confidentiality and the ethical use of data.
Organizations and individuals who collect or utilize cancer data, including state cancer registries, researchers, and public health officials, are required to file according to NAACCR guidelines.
Filling out the NAACCR Data Release Guidelines involves completing the designated forms accurately, providing necessary information about the data request, and submitting the forms to the relevant authority according to specified instructions.
The purpose of the NAACCR Data Release Guidelines is to regulate data sharing, protect patient confidentiality, and promote the responsible use of cancer data in research and public health initiatives.
The information that must be reported includes the type of data requested, the intended use of the data, and how data privacy will be maintained, among other specifics about the data collection process.
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