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Get the free ADPKD Registry: A Patient-Centered Research Tool

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Fundraising toolkit APRIL 2024Thank you for stepping up as a fundraiser! Dear Fundraiser, Thank you for signing up to fundraise for PKD. Our fundraisers raise money to fund crucial PKD research and
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01
Access the adpkd registry website or platform
02
Create an account or sign in with existing credentials
03
Fill out the patient-centered information form, providing accurate and detailed information about the patient's condition and medical history
04
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Save and/or print a copy of the completed form for personal records

Who needs adpkd registry a patient-centered?

01
Patients diagnosed with Autosomal Dominant Polycystic Kidney Disease (ADPKD)
02
Healthcare providers and researchers studying ADPKD
03
Family members and caregivers of individuals with ADPKD
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The ADPKD registry is a patient-centered database that collects and stores information related to individuals diagnosed with Autosomal Dominant Polycystic Kidney Disease (ADPKD) to enhance research and improve treatment approaches.
Health care providers and institutions that treat patients diagnosed with ADPKD are required to file the ADPKD registry.
To fill out the ADPKD registry, healthcare providers must collect patient data using the provided forms and submit the information through the designated online portal or system.
The purpose of the ADPKD registry is to gather comprehensive data on patients with ADPKD to facilitate research, improve patient outcomes, and support the development of effective therapies.
The information that must be reported includes patient demographics, medical history, kidney function data, treatment plans, and any complications related to ADPKD.
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