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RARE DISEASE GENOMIC TEST ORDER FORM Do not use this test order form for WGS test requestsPATIENT DETAILS (or address label)ORDERING CLINICIAN INFORMATIONNHS NO.*SUBMITTER HOSPITAL*HOSPITAL NO.RESPONSIBLE
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Gather all necessary medical documents and test results related to the rare disease.
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A rare disease is a medical condition that affects a small percentage of the population, often defined as affecting fewer than 200,000 individuals in the United States. The term 'whole' may refer to the comprehensive understanding or documentation of all aspects of rare diseases.
Typically, biotechnology companies, pharmaceutical manufacturers, or researchers involved in the development or study of treatments for rare diseases are required to file the rare disease - whole.
To fill out the rare disease - whole, you must gather relevant medical data, research findings, and patient information. Follow the provided guidelines or forms, ensuring accuracy and completeness in all sections.
The purpose of rare disease - whole is to collect comprehensive data on rare diseases to facilitate research, improve diagnosis and treatment, and enhance awareness and understanding of these conditions among healthcare providers and patients.
Information that must be reported includes patient demographics, disease characteristics, treatment protocols, research findings, and any adverse outcomes related to the disease and its treatment.
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