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This document provides information about the Core Registry for rare endocrine and bone conditions and seeks patient permission to share data voluntarily. It explains the purpose of the registry, data storage, patient participation, and the rights regarding data sharing.
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Begin by reading the instructions on the core_pif-icf_english_child 16-18 form carefully.
02
Gather all relevant information about the child, including their name, date of birth, and any medical history.
03
Fill in the personal details section with accurate information.
04
Complete the ICF (International Classification of Functioning) components section by assessing the child's functioning and health.
05
Use a scale to rate different domains such as mobility, communication, and social relationships.
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Make sure to provide specific examples or observations that support the ratings.
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Who needs core_pif-icf_english_child 16-18?

01
Parents or guardians of children aged 16-18 who require assessment for services.
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Health care providers involved in evaluating the child's physical and mental health.
03
Educational professionals seeking to understand the child's functioning in relation to school support.
04
Social workers or case managers coordinating care for the child.
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core_pif-icf_english_child 16-18 is a standardized form used to collect information about English language proficiency for children aged 16 to 18.
Educational institutions must file core_pif-icf_english_child 16-18 for students in the specified age group to assess their English language skills.
To fill out core_pif-icf_english_child 16-18, provide accurate personal information, language background, and details regarding the student's English language education history.
The purpose of core_pif-icf_english_child 16-18 is to evaluate and document the English language abilities of children, which aids in providing appropriate educational support.
The information that must be reported includes the student's personal details, language proficiency level, educational background, and any previous assessments related to English language skills.
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Core Registry rare endocrine conditions bone conditions patient consent data sharing European Reference Networks healthcare data medical registry patient participation endocrine disorders

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