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Dear Registry Applicant,
Thank you for your interest in the National Registry of Myotonic Dystrophy and
Facioscapulohumeral Muscular Dystrophy Patients and Family Members! The
Registry was established
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What is unaffected family member?
Unaffected family member refers to a family member who is not directly impacted or affected by a specific situation.
Who is required to file unaffected family member?
The person responsible for filing unaffected family member would typically be the individual or entity requesting information about family members.
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To fill out unaffected family member, one would need to provide relevant information about family members who are not impacted by a particular circumstance.
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The purpose of unaffected family member is to provide a comprehensive understanding of the family dynamic and identify those who are not affected by a specific event or situation.
What information must be reported on unaffected family member?
The information required to be reported on unaffected family member may include names, relationship to the individual or entity filing, and confirmation of their lack of direct impact.
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