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Version 1 Aug 2017Canadian Retinoblastoma Research Registry Data Access Request Form As a part of the Canadian Retinoblastoma Research Registry (CARR), registrants can choose to be contacted by the
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How to fill out canadian retinoblastoma research registry

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How to fill out canadian retinoblastoma research registry

01
Visit the official website of the Canadian Retinoblastoma Research Registry.
02
Click on the 'Register' or 'Sign Up' button to create a new account.
03
Fill out the required personal information such as name, age, contact information, and medical history.
04
Consent to participate in the research registry by agreeing to the terms and conditions.
05
Submit the completed form and wait for confirmation of your registration.

Who needs canadian retinoblastoma research registry?

01
Individuals diagnosed with retinoblastoma
02
Medical professionals and researchers studying retinoblastoma
03
Families of individuals with retinoblastoma looking to contribute to research
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The Canadian Retinoblastoma Research Registry is a national database that collects and analyzes data related to retinoblastoma, a rare form of eye cancer that primarily affects children, to improve diagnosis, treatment, and outcomes.
Health care providers, including oncologists and ophthalmologists, who are involved in the diagnosis and treatment of retinoblastoma in patients are required to file the Canadian Retinoblastoma Research Registry.
To fill out the Canadian Retinoblastoma Research Registry, providers must gather patient data, including clinical details and treatment outcomes, and submit the information through the designated online portal or form provided by the registry.
The purpose of the Canadian Retinoblastoma Research Registry is to enhance understanding of retinoblastoma, develop better treatment protocols, facilitate research, and ultimately improve patient care and outcomes.
Information that must be reported includes patient demographics, clinical diagnosis, treatment details, follow-up data, and any outcomes related to the patient's condition.
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