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NewsSummer 2023Funding Cancer Research: Innovative. Agile. Experienced.Insiders Point of View EditionAJ Shiekman, left, with Dr. Silver at the 2022 Cancer Survivors Hall of Fame Dinner.Each year,
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Ensure patient partners and researchers understand the purpose and objectives of the study.
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Assign specific roles and responsibilities to each individual to ensure clear expectations.
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Provide training on research protocols, ethics, and any necessary skills or tools.
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Establish regular communication channels for updates and feedback.
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Encourage collaboration and input from all team members during the research process.
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Document all findings and progress in a systematic manner for future reference.

Who needs patient partners and researchers?

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Researchers who want to ensure their studies are inclusive and relevant to the patient population.
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Healthcare organizations looking to improve patient outcomes through research collaboration.
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Patients who want to be actively involved in shaping research initiatives that impact their health and well-being.
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Patient partners and researchers refer to the collaborative relationship between patients who share their experiences and insights and researchers who seek to improve healthcare through studies and clinical trials.
Typically, researchers and institutions involved in healthcare research projects that affect patients are required to file information regarding patient partners.
Filling out patient partners and researchers generally involves collecting data from patient partners on their involvement in research activities and documenting this in a specified format or form provided by the relevant regulatory body.
The purpose of patient partners and researchers is to enhance the relevance and quality of research by incorporating patient perspectives and making healthcare research more patient-centered.
Information that must be reported includes details about the patient partners' involvement, such as their contributions, roles, and any compensation received for their participation in research.
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