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TREATED SMA Registries Core DatasetTREATNMD SMA Registries Core Dataset
Version 1.1_DRAFT
01.08.20181Table of Contents
1. The Dataset ...................................................................................................................................................................................................................3
Section
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How to fill out treat-nmd sma registries core

How to fill out treat-nmd sma registries core
01
Go to the Treat-NMD website and locate the SMA Registries Core page.
02
Click on the 'Register' button to start the registration process.
03
Fill in the required personal information, such as name, date of birth, and contact details.
04
Provide any relevant medical information about the patient's SMA diagnosis and treatment.
05
Follow the instructions to complete any additional forms or questionnaires related to the registry.
06
Review your information and make sure all the details are accurate.
07
Submit the registration form and wait for confirmation of successful registration.
08
Keep your registration details and login information for future access or updates to the registry.
Who needs treat-nmd sma registries core?
01
Patients diagnosed with Spinal Muscular Atrophy (SMA) and their healthcare providers or caregivers benefit from the use of Treat-NMD SMA Registries Core.
02
Researchers and clinicians also utilize the registry to gather valuable data for research purposes and to monitor the effectiveness of treatments in real-world settings.
03
Pharmaceutical companies and regulatory agencies may also look to the registry for information on the SMA patient population and treatment outcomes.
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What is treat-nmd sma registries core?
Treat-nmd sma registries core is a database designed to collect and store data on patients with spinal muscular atrophy.
Who is required to file treat-nmd sma registries core?
Healthcare providers and researchers involved in the treatment and study of spinal muscular atrophy patients are required to file treat-nmd sma registries core.
How to fill out treat-nmd sma registries core?
To fill out treat-nmd sma registries core, healthcare providers and researchers must input relevant patient data into the database following the provided guidelines.
What is the purpose of treat-nmd sma registries core?
The purpose of treat-nmd sma registries core is to create a centralized database of information on spinal muscular atrophy patients to facilitate research and improve patient care.
What information must be reported on treat-nmd sma registries core?
Information such as patient demographics, medical history, treatment plans, and clinical outcomes must be reported on treat-nmd sma registries core.
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